Thursday, January 3, 2008

Pediatric Infectious Disease Doctor

Dr. O met with us for an hour today. He spent a long time discussing N's history of strep and his test results. I think that Dr. O had made up his mind before we even came. He said the research on PANDAS is weak and the research on PANDAS-AN is even weaker. He said he didn't want to put N on antibiotics -- and was worried that that we would perceive improvement even if there was none. There were a couple of missteps as he discussed the anorexia and I had to correct him. The end result was that he was going to call the Eating Disorders Clinic at our Children's Hospital and see if they thought there was anything to the PANDAS-AN research. I'm willing to let him. I also intend to discuss it with them later in the month when they finally see N.

I think if I insisted, he would let us try the antibiotics, but I'm willing to wait until after we go to the Children's Hospital later this month. I don't understand why it wouldn't be worth a try -- even if the researched links are still tenuous.


Erica said...

I don't understand what harm would it do to try the antibiotics?!? Is your doc worried that insurance won't cover it? It seems like a no brainer to me...our pediatrician is sick today so she canceled our appointment. I am frustrated because now I have to take my daughter out of school on Monday to go see her and we already have two other appts that day...I am not in a good space right now!

Wendy said...

I agree. If there is even a remote possibility that they would help, why not? I still may push the issue.